Harpenden's new MP has met with a charity which supports families affected by a severe childhood neurological disorder.

Victoria Collins MP visited the AT Society's headquarters in Harpenden to learn about their work with Ataxia-Telangiectasia (AT), a rare degenerative and life-limiting genetic condition.

The charity was co-founded in 1989 by Harpenden resident Maureen Poupard, whose children Caroline and Gregory both died from the disease.

Ms Collins met with Susie Norbury, director of fundraising and operations, and Kay Atkinson, head of services.

After the meeting, Ms Collins, who is Harpenden and Berkhamsted’s new MP, said: "It was a great privilege to meet the AT team and learn about the extraordinary work they do for families across the UK, all from an office, and humble beginnings, here in Harpenden.

"Through their hard work and dedication over 35 years, the society has made a huge difference to families affected by this devastating condition.

"We spoke about the challenges these families experience from education, health and care provision, benefits management, and appropriate housing.

"I also heard about the increasing challenges faced by the voluntary sector, and the team’s extensive work with the NHS.

"As the local MP, I will provide the AT Society with all the ongoing support I can.

"We should be very proud that Harpenden is home to such a remarkable organisation."

The AT Society provides research and support for AT, which causes disability, difficulty with speech and movement, respiratory problems, cancers, and premature death.

The charity funds specialist clinics and research for a cure.

It also raises awareness of AT and supports families through outreach, mental health support, and advocacy.

On her visit, Ms Collins met with Susie Norbury, director of fundraising and operations, who said: "We were delighted to meet with Victoria.

"The challenges that small charities are facing right now, especially in terms of increasing beneficiary needs at a time when funding is decreasing, are considerable.

"We are so pleased to have the support of Victoria to help with the issues that matter and the realities facing our community."